When Leslie Lindsay's daughter was diagnosed with childhood apraxia of speech five years ago, Lindsay threw herself into learning as much as possible about the neurologically-based motor-speech disorder. Now she's taken that research, as well as information gathered from speech-language pathologists, conferences and a support group, and written "Speaking of Apraxia: A Parent's Guide to Childhood Apraxia of Speech." It was just published this month.
Lindsay, 33, was a former child and adolescent psychiatric nurse at the Mayo Clinic. She's now a stay-at-home mom and writer who lives in the Fox Valley and blogs at leslie4kids. Her husband Jim is a senior researcher at the American Institute for Research; their daughters are Kate, almost 7, and Kelly, 5.
Read on to find out why we think Leslie Lindsay is a Go West Mom You Should Know.
Q. Can you tell me about "Speaking of Apraxia"? Why did you decide to write this book? What do you hope it accomplishes?
A. When my daughter Kate was diagnosed with childhood apraxia of speech (CAS) in 2007, I was completely dumbfounded. Like most, I didn't know what CAS was -- or how to help my daughter. I began reading all I could on the disorder and became frustrated, discouraged, and yet wanting more -- as ironic as that seems! The Internet is great, but you can really drive yourself nuts trying to read and decipher all the "hits" you get on a Google search.
I checked out really old-school speech pathology books from university libraries, attended conferences, interviewed SLPs (speech-language pathologists), facilitated my own apraxia group, "Small Talk: All AboutApraxia" consisting of parents of children with CAS. I wanted to connect with others and help them on theirapraxia journey. Apraxia can be such an isolating diagnosis because not many kids have it. As a parent, you are just sort of stumbling along. The book is divided into five sections, which sort of mimic that of the five weeks my group met: